Frequently Asked Questions

The Alzheimer’s Disease Data Initiative (AD Data Initiative) is a coalition of leading academic, advocacy, government, industry, and philanthropy organizations that recognizes the need for dementia researchers to find easier ways to share unpublished data, analytical tools, and scientific findings. These partners are working together to accelerate progress towards new diagnostics, treatments, and cures in Alzheimer’s disease and related dementias (ADRD).

Click here for more information.

For general inquiries, click here. To explore the AD Workbench, click here.

• Current platform partners seeking to bring new data sets to their platforms
• Current platform partners seeking to add existing data sets to the AD Workbench
• Researchers and organizations seeking to add new data to the AD Workbench
• Researchers and organizations seeking to integrate additional platforms to the AD Data Initiative and AD Workbench
• Opportunities to enhance or fill gaps in data sets including enabling broader demographically representative datasets
• Data-science projects that use and highlight the capabilities of the AD Workbench
• Data Use Agreement templates to ease access for new contributors

AD Data Initiative does not accept unsolicited grant applications. Click here to sign up for the newsletter and we will let you know as funding opportunities become available.

The AD Workbench is an open, inclusive, global, and easy-to-use set of tools that make it possible for AD researchers around the world to share data and resources.

Register here to search datasets available on the AD Workbench

Any qualified researcher or data scientist can click here to explore the AD Workbench. Additional permissions may be required to access some of the datasets within the AD Workbench and to access a workspace.

Click here to request a user account.

The registration process is automatic, permissions for data and workspaces are not automated and includes a review process.

It varies depending on the dataset. You can find instructions in each dataset description in the AD Workbench.

Users can search, analyze, and manage existing datasets; save their work; upload and share new datasets and code; and allocate their workload to a virtual machine.

To publish the work created leveraging the AD Workbench, please cite the Alzheimer’s Disease Data Initiative website. Here is an example in APA format.

AD Workbench. (2024) . Alzheimer’s Disease Data Initiative [Web site]. Retrieved from https://www.alzheimersdata.org/

If datasets made available via ADWB are used during the analysis, it is required to cite them separately. Please contact the respective data owners for the specifics of the citation information.

Data owner information can be found in the metadata section of the dataset on FAIR portal.

The AD Workbench is built on the Aridhia DRE platform (Security and Compliance information can be found here).