Resources for ADRD Data Sharing, Funding, and Research Impact 

The Alzheimer’s Disease Data Initiative helps ADRD researchers and data contributors navigate data sharing. Explore the AD Data Initiative's guidance on navigating data-sharing policy and legal questions, a look at projects the Initiative has supported, and case studies showing what shared ADRD data has made possible.

Tools for Researchers

The AD Data Initiative’s data-sharing toolkit helps ADRD researchers navigate consent language, data use agreements, GDPR and HIPAA privacy requirements, and NIH data management and sharing planning. 

AD Data Initiative-Funded Projects

The AD Data Initiative funds new and existing data-sharing activities, supporting organizations advancing bold, innovative approaches to ADRD data collaboration. 

Power of Data Sharing: Case studies

Data sharing accelerates ADRD science in ways that would be difficult to achieve alone. Read case studies showing how shared Alzheimer’s and ADRD data has powered real research breakthroughs, from large-scale biomarker discovery to novel digital diagnostics.