Data Sharing Toolkit

One of the main barriers to data sharing is the lack of clarity around legal and regulatory policies and practices.

This toolkit includes new and existing resources from trusted partners that may provide guidance on same key data sharing issues.

Decision Tree

Decision tree to determine if consent forms permit sharing data with third parties for secondary research on Alzheimer's disease.
Download the Decision Tree

Model informed consent language for prospective studies

Guidance for navigating consent in existing studies:

Model data use agreements and guidelines


HIPAA privacy requirements:

Disclaimer: The material available in the Resources section of this website (the “Information”) is for informational purposes only. The Information is not legal advice. The Information may not be suitable for your intended purposes. Where possible, the Information is dated to reflect when it was last updated, but the Information may not be current. The Information may not reflect laws or regulations specific to your place of residence or the location of your research. You should not consider the Information a replacement for seeking your own legal advice.